About Me

I am a woman born with Ehlers-Danlos Syndrome.

I am a woman born with Ehlers-Danlos Syndrome. For more than 20 years I have been a wheelchair user and a disability rights advocate. I have experienced discrimination and many obstacles, but I also had opportunities to raise myself up and to work for change on an individual, local, national and international level.

I have strong analytical and problem-solving skills, in-depth knowledge of disability issues and a lot of practical experience. I believe in leading by example, in nudging and inspiring. I believe that we have to change the perception and see disability issues as something that affects us all. Some of us have a disability or a close relative or a colleague with a disability, it might be temporary, a sports injury or a depression or something you where born with. But it is also a question of recognizing the strength of diversity and that tools such as universal design, can make life easier for everyone. Easier to for example use public transportation with a baby carriage or to access information on a website.

I believe that together, we can make a change, international institutions, governments, civil society and the individual who just wants to make sure, that no one is left behind. That is why I am running as a candidate to the CRPD Committee.